CGM Study and Why a CGM?

Courtesy of Salvatore Vuono

Photo courtesy of Salvatore Vuono

 

The CGM study that endocrinology offices do all over the country is a blind-to-the-patient, study.  I started yesterday.  I signed a form agreeing that if I broke or damaged the sensor I’d immediately pay $900 to replace it (striking me as a bit harsh considering accidents can happen).  Then the woman in charge of fixing me up, a dietitian, inserted the sensor and told me that I would not know what my graph looks like but they will.  She said they might call me if something needs to be changed.  She handed me papers to fill out.  I need to write down when I test and what my sugar is, when I eat and how many carbs I eat, how much insulin I take and detailed exercise info.  I hate writing down all this stuff-perhaps because I’ve been told to, but it won’t be too bad considering it’s only a three day study. 

I will return the sensor along with the paperwork on Thursday and in several weeks I meet with the doctor to go over the results.  I don’t know if my insurance will cover this yet.  I know they pre-approved the study so hopefully they will approve and cover my permanently using it.  Someone at the Diabetes Sisters Conference told me I needed to have two lows under 50 per day while on the study for insurances to justify covering the CGM.  I would rather go without it than have to lie to get it.  For reasons of justice and pride I will not lie.  However, I’ve already had two low readings in the 50’s and 60’s which I don’t consider problematic since I feel my lows at 60 and I am comfortably at home all day and can easily enough treat when needed.  If I was out I’d make sure I ran my numbers closer to 120 than 80.

I feel strange that someone might know what my blood sugars are right now and I don’t.  It’s an uncomfortable feeling and I look forward to experiencing the CGM along with the receiver (is that what it’s called?).  Of course, this is If some unknowing party decides I should have it.  (rolls eyes)

I cried earlier today reading a post at The Princess and the Pump written by a parent of a child with type 1 diabetes.  This young girl has a CGM and her parents heard the alarm in the middle of the night, testing their daughter and finding her dangerously low.  The little girl eventually had two low blood sugar induced seizures and ended up in the hospital.  The parents are wondering if a faulty pump cartridge is to blame.  The point is, the CGM saved this girl’s life.  And just because I haven’t experienced ever needing help from a low blood sugar doesn’t mean I won’t one day.  This story alone is enough motivation for me to want one if I can get access to it.  If it isn’t covered by insurance I cannot afford it.  So fingers crossed. 

For those non-diabetics reading out there I ask you this; If you had type 1 diabetes and a simple device could alert you to dangerously high or low blood sugars (both of which could quickly lead to death) would you want it?  If this was your child, would you want to know that a device was looking after their blood sugars while you and your child tried to do something normal like sleeping safely at night?  Do you think it sounds reasonable that diabetics out there ask for their insurance to help cover the costs of a potentially life-saving device?  I do.  I mean, death is permanent.  Technology like this can make all the difference. 

Here is the best explanation I’ve ever heard of why insulin isn’t a cure that I hope everyone will take a minute to read:  Not Even Close

4 thoughts on “CGM Study and Why a CGM?

  1. Reyna

    First off…”Thank You” for the shout out.

    AND…secondly I can see the discomfort in knowing others can see your numbers while you cannot. I would feel strange about that too…even though they are Joe’s numbers (not mine…you get my drift though). I hate that people have to have “X” amount of lows to qualify for approval. These devices are quite helpful to many. They enable type 1’s to stay safe, to live a more active life, they allow parents of type 1’s to sleep a few hours (sometimes). I hope you get one…even though I hope you don’t go low…

    Oh, and I read your “relationship” post for the DSMA Carnival and loved it. I found yours to be the most “relatable” out of all that I read. Thank you.

  2. Scully

    I meant to respond to your comment on my blog recently about the CGM. yes, despite all its downfalls I wouldn’t think twice. Right now I’ve made the decision to wear it full-time. the CGM to me has two purposes. One, I have better control when I can see the trends and Two, emergencies like the one stated above with Princess and the Pump.

    All my CGM costs come out of pocket. I wish the insurance companies could see how a life (like princesses) was possibly saved due to the CGM. Sure sometimes the technology is untrustworthy but the benefits far outweigh the problems. I have way too much to say on this topic.

  3. Melissa E

    Great post Sysy. I have considered the CGM just for exercise and overnight trending, but I have a feeling if I went on one I would wear it all the time. Hoping insurance companies will begin to see the light and decide to cover these devices 100%!

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