Category Archives: for type 1 and 2 diabetics

Why Dr. Bernstein is an American Hero and Why Doctors Should Be Curious About Him

My colleague at Diabetes Daily, Maria Muccioli, Ph.D., wrote an excellent and in-depth coverage of a remarkable study on very low-carb diets for treating type 1 diabetes in children.

The study found that a group of type 1 diabetic children following a very low-carb diet à la Dr. Bernstein style were not only experiencing normal blood glucose levels (this is nearly unheard of in type 1 diabetes) but also growing well (a top concern as macronutrient intake of carbs is widely believed to be essential for growth in children).

The researchers of the study looked at children from a Facebook group called Type1Grit. This group consists of adults with type 1 diabetes and parents of children with type 1 diabetes who all follow Dr. Bernstein’s regimen. This regimen includes very low-carbohydrate intake but so much more–put just any type 1 diabetic on a very low-carb eating plan, and I promise you’ll likely not get the results you are hoping for–though if you pay close attention to blood sugars you may notice some interesting things regarding the statistical range of error after giving smaller amounts of insulin. It’s about more than low-carb eating. Low-carb is essential to the plan but to do well, there are more things to do and understand. One must understand how to use and adjust insulin properly, understand how different physical activity impacts blood sugars, and so on. The Type1Grit group does so well because they utilize Dr. Bernstein’s decades’ long expertise to guide them (which is all in his book) and like any good support group, they help each other stay focused, informed, and motivated.

Some people on social media have voiced strong opinions against the group due to some of their outspoken members. It is my hope that we focus on content over delivery when it comes to important matters. After all, if fellow thinkers had rejected Issac Newton’s findings simply because he was a jerk (and according to the book I’m reading my kids about him he was) wouldn’t that be a shame? Personally, I strive to be gentle with others because I am quite sensitive. However, I also try not to put my feelings above critical thinking, and I think that serves me well. I also hope that the communication of a few doesn’t cause some to dismiss the whole group or worse–a promising idea. That said, I have not personally observed anyone from that group being rude to others, though some have been quite open and blunt with their opinions and I have observed a very strong response to that, in general. I do not consider an opinion shared in a straightforward manner to be rude.

My Personal Story Following Dr. Bernstein’s Advice

I have followed a loose version of Dr. Bernstein’s protocol for about a decade, further lowering carbs and adding in more of his advice gradually over the years (I now follow his advice very closely). His logic struck me like lightning when I read his book, Dr. Bernstein’s Diabetes Solution. In particular, I was deeply moved by a line that said something about how people with type 1 diabetes “deserve normal blood sugars”. Dr. Bernstein’s protocol includes the use of Regular insulin to cover high protein meals versus faster analog insulin such as Humalog or Novolog. In fact, after using a CGM (continuous glucose monitor) for the first time recently, I quickly saw how my Humalog was a bit too quick and potent at mealtime and then a bit too short hours afterward, so I bought Novolin R at Walmart for $24 and have improved my blood sugar levels. This is to stress how following Dr. Bernstein’s protocol is about more than just reducing carbohydrate intake.

Many years ago, I found immense value in attempting just a little bit of Dr. Bernstein’s advice. Small changes like lowering my carbohydrates and understanding how to use my insulin better led my A1c to drop from 8-9% down to 6%. Before this, just covering high amounts of carbohydrates with insulin had mostly succeeded in making me fat, tired, depressed, and anxious (oh and with protein spilling into my urine as an 18-year-old in her “prime” of life). You have to understand how terrible this was for me–I was a bright-eyed kid who was intelligent, hopeful, hardworking, patient, and super determined. In a few short years, diabetes messed with my potential–I didn’t recognize myself anymore. It’s particularly sad to spend years recovering as a young adult when you’re supposed to be at peak performance and potential due to your youth and energy.

Dr. Bernstein, who many dare call a “quack” or “nutjob” saved my life just as he saved his own. My A1c hasn’t touched 6% in many years. I have a wonderful husband. We have twins who are about to turn 9. I’m still trying to reverse some of the consequences of very high blood sugars from my first 10-12 years with diabetes. What if I didn’t have to?

What Actually Does More Harm?

People tell me that eating low-carb will hurt my cognitive abilities. Do they know that studies indicate that typically managed type 1 diabetes may do that, anyway? Type 1 diabetes (with the average management of 8.2% A1c in the U.S.) has been shown to possibly lower intelligence and negatively affect memory and speed. Low-carb in the long-term may hurt my cognitive abilities (I haven’t seen anything to indicate this possibility though) but what if it just takes the place of what high blood sugars would have done to my cognition? And what if low-carb additionally helps protect my cardiovascular health and my kidneys and my eyes–oh and allow me to have healthy children! Do you know how fortunate I am that I turned things around when I did? I have children because of the information that turned my health around just in the nick-of-time. I can’t begin to describe the level of rage I might have had I never had children yet discovered that Dr. Bernstein has been trying to tell the world about his successful method for decades.

Where is Our Curiosity?

If you find Dr. Bernstein followers as angry or overly-passionate, this may help explain why: Unnecessary suffering is a tragedy. We’re in a country whose founders had been curious and open to acknowledging ideas that are worthy, pushing those ideas to the top where they can be put to the test and then accepted as the best ideas because they can create the best outcomes. This is the great thing about Western Civilization. The embracing of objective principles which allow the best ideas to rise because even if they come from someone we can’t stand, we know that ideas, critical thinking, and truth reign over all else and push us towards progress. Dr. Bernstein’s protocol isn’t an expensive training center and it’s not just for the elite of the world. He thrives using a cheap insulin in the same country where people die because they don’t know they can change their dietary habits and purchase cheap over-the-counter insulin in most states and survive.

From an economic and financial viewpoint, Bernstein’s protocol is also a stunning success. I don’t use an insulin pump or a CGM (I only got to test one out) and yet I can achieve my glycemic targets. I don’t need any apps, certified diabetes educators, or expensive technology. I don’t anxiously await a closed-loop hybrid insulin pump system because I don’t need it. I put all my energy into my simple but effective daily lifestyle. Providers who want to see healthier patients, please read Bernstein’s book. Your lower income patients may not want to follow the regimen in part or entirely but those who are willing deserve to know how to thrive with diabetes despite being poor or lower middle class, like me. I give myself excellent care for cheap–doesn’t that peak your interest?

People are justifiably angry over insulin prices but what about the medical community’s unwillingness to be curious about one doctor’s personal plan to keep himself at peak health and fitness well into his 80s? Without curiosity, what on earth then drives a doctor to investigate the issues in each patient as well as find the proper and least harmful solution? I tell my doctor how I managed a huge drop in A1c for the first time in my life and he has no questions regarding how I did it? I read doctor responses to research that shows a teeny tiny improvement in A1c and now they think “this shows wonderful promise and we should look into it further!”? I basically told my doctor I might have just saved my own life and drastically improved my quality of life, and he’s like “meh”. I told another how I did it and he said, “good for you.” Yes, good for me, but what about some of your patients who are as I was, struggling to get a halfway decent hold on their blood sugar and suffering? What about them? Don’t you have an obligation to check this out? This gives my doctor less work, by the way! For a decade now my doctor does nothing to manage my diabetes–he just orders labs. Aren’t doctors wanting more patients that can manage their blood sugars and don’t need them so desperately at all hours?

It Takes “Too Much Discipline” or “Restraint”

Nothing terrible ever happened by being disciplined. Think of all the amazing people out there and from history–what could they have accomplished without discipline? Probably nothing but a few moments of greatness. Discipline encompasses you within a realm of potential greatness. And if you create a system, discipline isn’t a show of willpower as much as you just loyally following your regular routine.

Much research backs up the potential of the ability to defer gratification. Who is more likely to become successful? The person who can restrict themselves from their impulses and short-lived desires, right? Let me put it this way: who would you rather marry? Someone who can keep their impulses in check or someone who can’t? Or who would you rather be? Someone who doesn’t overeat or someone who regularly does? I remember having hearts in my eyes when my husband told me “I never overeat”. I have long struggled with overeating, and when he said this, I was impressed by him and thought, “wow, I want to be like that.” I believe this is the empowered response. I could have given the common humorous response of “ugh, you make me sick” but where would that have gotten me? Instead, I tried to learn from my husband and improve myself.

I also think the healthy response is to admire someone like Dr. Bernstein for what he has accomplished against great odds. Dr. Bernstein is respected by so many because he created a well-functioning system to get himself thriving and generously shared his findings with others. In fact, as an engineer, he became an endocrinologist so that he could help others after he figured out how to save himself. He should be regarded as an American hero, whether you want to do what he recommends or not.

I believe in freedom and personal rights. I’m an immigrant who is incredibly happy to live in the U.S. Growing up when I found something challenging and I didn’t want to face it, my dad would say “Are you an American or an American’t?” I would often roll my eyes but, yes, I’m an American and believe I have the power to set my mind to improve myself if I want and I’m grateful for those who have set their minds to things and laid out paths before me. Thank you, Dr. Bernstein. I may never reach your astounding level of discipline but what I have been able to achieve with your advice has been most valuable to me and my family and I am forever grateful.

En fin, I’m certainly not saying you should do what he does or what I do. And I can respect wherever you are on your journey. I’m saying that Dr. Bernstein’s method has shown undeniably incredible potential and results and the general lack of curiosity and investigation on behalf of the global medical community makes absolutely no sense to me. There are now thousands of people doing it and doing it well.

Newton supposedly struggled with his ego and an inability to face criticism or questioning during his lifetime. Let’s have his overwhelming curiosity without the pride, his determination to dig and experiment properly without his emotionally unstable and anti-social ways.

I will leave you with one more thought:

Just a little bit less damage sustained is a great deal to the person enduring it, especially when they still have many decades ahead of them.

4 Things I Learned During My 2 Weeks on Crutches

It’s been a little over two weeks, actually.

The quadriceps tendon basically attaches your knee to your thigh muscle. I badly hurt mine stretching one morning. You might agree with the urgent care doctor who told me I “need a better story.”

In thinking about how stupidly easy I hurt myself and how it resulted in severe inconvenience, I realized there were many lessons I was getting out of this experience if I so choose to embrace them.

4 Things I Learned During My 2 Weeks on Crutches

1. “Don’t bite the hand that feeds you” doesn’t go far enough in my opinion. I would change that to “Be sweet and patient towards the hand that feeds you” even though it’s not as catchy.

My husband, Alex, helped me out of bed in the morning. He made my food. He did the laundry. He took over things with the kids. He washed the dishes. He took the time to make my “second coffee” because the first is for me to wake up and the other to enjoy slowly. He even visited with me so that I wouldn’t feel lonely in between all his work, which included building an entire fenced-in garden.

At first, Alex was overwhelmed. Why wouldn’t he be? He has an entirely different routine every day of the week. Stepping into someone else’s busy day without having their habits and experience is harder than it sounds. I’ll admit I was secretly a little pleased that he saw how hard I work, even though he doesn’t make me feel like I don’t work hard.

I initially insisted that things be done a certain way or asked him to do more and realized this was counterproductive. The first two days were rough with him trying to adjust to some rhythm, and I worked hard to bite my tongue and really sweetly say nothing other than “thank you”. My gratitude for all he was doing and patience for his learning curve paid off. I saw my efforts rewarded with a superman I’ve never seen before. Alex was like a young Alfred Pennyworth. For various brief moments, I considered never walking again.

Be sweet and patient with those helping you out. 

2. It’s a real act of courage to be vulnerable. Now, normally I’m all about doing whatever we all can to avoid being pitiful. I try to take care of myself, handle my problems on my own whenever possible, and I don’t let myself be a pushover.

Sometimes, we simply are vulnerable. Not only could I not walk, my tendon was causing me a lot of pain so even if I was sitting still, I was grimacing or tearing up. For the first week, I tried doing everything myself and hopped around so much my good leg started feeling sore. I didn’t want my husband to help me or see me having a hard time because I didn’t want him to pity me. I told him this, and he reassured me that he didn’t pity me in an “ugh” way but in an “I love you, and I’m sorry you’re hurt” kind of way.

So, I tried to let go and be what I was–someone who couldn’t even put pants on. After all, if I was going to heal, I needed just to accept help and be ok with someone looking at me like “awww…”

I cried a bit over the helplessness I felt at everyone doing everything for me. But maybe I also cried because of how lovely it was to be taken care of in all those ways.

Accept help when you need it and don’t be afraid to be vulnerable. 

3. Sometimes life makes us stop and smell the flowers because we’re too busy to remember they’re even there. I found myself looking out the window at the lovely trees and wishing I could take a stroll around the block. I’ve been so busy lately that I haven’t taken the time out to enjoy Spring! How silly of me!

I’ve made a list of things I want to do, like plant some stuff in the garden, as soon as I am able. It’s funny how we don’t know what we’ve got until it’s gone.

In the meantime, I’ve embraced what I can do now, so I’ve been watching movies that Alex enjoys (he deserves it) and reading books and sleeping more. I cleaned out my closet while on crutches by throwing clothes I don’t wear on the bed to fold once I was sitting and then putting them in a bag for donation. I’ve also been able to catch up with my parents and brother and sister who have come over to help me.

Do what you can, today, because tomorrow you may not be able to.

4. I’ve also surprised myself by missing chores like cleaning the floor, cooking, and washing dishes. Not because I particularly enjoy these tasks, but because doing these things keeps the house nice and tidy and they are acts of love for oneself and one’s family.

I watched my family doing these things, and I felt the love. And so I thought, “Is this what Alex and the kids feel when they see me doing all these things?” This felt like an epiphany, and I vowed to never complain about cleaning and cooking again but be glad I have the privilege to do it and the loved ones for whom to do it.

Work isn’t a drag, it’s an honor.

I try to go through hard times gracefully, and I think I manage ok, but always only after a rough start. The first week of my injury I woke up every single morning from a nightmare. I cried every single day. It seems silly now that my leg finally feels like it’s beginning to heal. I’ve been nervous because the earliest a specialist could see me was weeks away! What if I wasn’t doing the right things for my leg to heal properly?

But I think it’s going to be ok, and I believe I’m going to be better off because of this experience and what I’ve learned from it.

5 Ways My Husband Supports Me and My Diabetes

  1. I eat low-carb because coupled with proper use of insulin it’s an undeniable way to get out of the blood sugar roller coaster (aside from those days when I forget I have diabetes–it happens). My husband eats whatever low-carb food I prepare with zero objections because while I try to make great tasting food, the fact is that he understands I do better if I’m not alone in the way I eat at home.
  2. He jumps up to get glucose tablets when I need them. When someone does something for you with a controlled sense of urgency, don’t you feel loved? I mean, I’m not going to die from a 50 mg/dL blood sugar level if he doesn’t swiftly get my glucose for me but I like that he moves quickly to get what I need. Nothing says “I love you” like showing someone you want to shorten their discomfort by a few seconds if you can, by acting quickly.
  3. He lets me have a pity party but he does not participate in it. I really appreciate that on the days I am wallowing over my diabetes, my husband respects that and is a shoulder to cry on. I also appreciate that he doesn’t join me, though. I like that when I see things through considerably foggy lens for a time, he is still seeing clearly. He doesn’t get all sad and pitiful with me because he sees that in objective terms, I’m alright and will continue to be once I have my good cry or time to vent.
  4. He doesn’t lie to me. This is one of the most important ways he helps me with my diabetes–and everything else. If i’m fat, I don’t dare ask my hubby if I’m fat because he’s going to look at me like, “why are you asking me a question you know the answer to?” To his credit he’ll say “you’re beautiful and I love you” (cuz that is what I was fishing for all along!) but to tell me i’m not fat, if I am? Nope, he does not support me having any delusions. He also wouldn’t pretend a 200 mg/dL blood sugar level is fine for me to have all the time and he also wouldn’t let me believe that me having ice cream each evening isn’t a problem involving a lack of self-control when it fundamentally is (speaking for myself here). As a result, I have a partner who wants the best for me and that is something we all deserve.
  5. My husband takes care of himself. In doing so he inspires and leads me to do the same. When someone who respects themselves loves you, you can’t help but want to respect yourself, too. Then when they’re having a weak moment, you can help lift them up as they’ve done for you. I hope I do that for him sometimes.

When Diabetes News Overwhelms You

I write about 6 articles a week for Diabetes Daily.

Most of what I do is share information regarding diabetes news and a great deal of that is comprised of studies that effectively help us learn more about the effects of diabetes on our bodies.

If it depresses or overwhelms you to read this types of news, believe me, I completely understand. I felt sick for the first few months of doing this kind of writing because every piece of what seemed like bad news gave me a strong negative physical reaction. I quickly realized I needed to do two things: compartmentalize and use actions to attack my fears.

What many of these studies iterated to me was that I needed to find a way to avoid as many high blood sugars as I could. One of the reasons I feel so strongly about this is that I’ve already dealt with the negative effects of prolonged high blood sugars and if I had been diagnosed last year, I’d likely feel a little less motivated to employ some serious interventions. Yet, maybe not, who knows.

Time and too many high blood sugars has taken it’s toll and I must fight to win back as much health as is humanly possible. I’m stubborn, as I’ve said before many times, and I want not just so-so health, but I want to be as healthy as a healthy person without diabetes. Will I achieve that? Probably not to the degree I’d like but I believe in striving for the best possible outcome, so that when I fall a little short, I’ll still be in a great place and proud of my efforts.

So how did I compartmentalize? Well, I started to read these harrowing news stories almost as if I was outside of my body and I didn’t personalize anything of the data for myself. For example, if I was looking at how many people with type 1 diabetes suffer kidney damage after a certain number of years with type 1, I did not allow myself to apply that to my many years with type 1. I basically pretended I didn’t have diabetes while I read and wrote about this. It sounds robotic, and it certainly kind of is, but my sanity is crucial to my overall health so I needed to get through the information, log it into my brain, and keep it there as pieces of useful data available to guide or influence my future decisions.

Now for the real important bit–attacking fears with action. The best way I know of to feel more in control and more motivated about a situation is to act on it. Action needs to be fueled by knowledge and caution, of course, but action is THE catalyst for any positive outcome we might enjoy. No one ever lost weight by thinking about it or wishing for it.

Here’s the dialogue that plays out in my brain:

What is my fear? That i’ll develop any number of complications.

What causes diabetes complications? If I’m going to generalize and I am, it’s high blood sugars both acute and prolonged over time.

So what should I do to manage my fear? Avoid high blood sugars.

How do I avoid high blood sugars? For about 8.5 years i’ve written about Dr. Bernstein and his low carb recommendations for people with type 1 diabetes. I’ve lowered my carbs gradually over the last 13 years and seen much fewer highs as a result. I’ve continued my efforts to the point of following a very low carb diet in a more consistent manner and i’ve seen even fewer episodes of high blood sugar and fewer episodes of low blood sugar, too. Also, the catastrophic highs and lows are nearly non-existent.

Fewer highs and lows have literally been the remedy to my fears. Now, I still have fears about certain aspects of this condition and I get tired of living with diabetes, but just like any human, I can’t expect to live without fear, I can only hope to manage it in a way that lets me accomplish what I want and be happy with my life.

Each time I read or write about diabetes, I keep it impersonal but I save the information away to use when I need motivation or information with which to make a decision.

I hope that you, too can consider new information carefully versus letting it alienate you from something that might help. Don’t be afraid to talk to a healthcare professional about what you read, too. Some studies are not as reliable as they seem. Others are funded by the very companies that stand to make a profit.

Remain skeptical but don’t turn away from information–it might be just what you need.

Why Do We Demand People Understand Diabetes?

Photo Credit: Ana Morales

Photo Credit: moreartplease.com

“Why are you eating that?”

“Why do you have to check your blood sugar in public?”

“Why are you so picky about your food?”

“How come your blood sugar is so often high or low?”

We hear these things sometimes, right?

Even though it can be tiring, over time I’ve learned to welcome any question on the above list and others like it. I appreciate the opportunity to answer these questions and the curiosity behind them. I will quickly admit that in some cases, people aren’t being curious but instead using a question as a way to provoke–in those cases I respond appropriately.

However, curious individuals asking me a genuine question do not cause me to be offended. How can I be offended by someone’s ignorance when I am just as ignorant on other subjects?

I think we should consider NOT demanding people learn what to ask us so that we can have open conversations and get real communication flowing.

Have you felt unsure about asking someone a question for fear of offending them? Isn’t it unfortunate? And doesn’t it lead to you to most likely stay ignorant? Has anyone ever asked you a bold, ignorant question, leading you to an opportunity to clear it up and feel truly heard?

When someone asks you a question, which below example would be the most productive response?

a) “I demand you inform yourself on the right questions to ask me.”

b) “When you ask me about this, please only do so if you genuinely want to know and intend on hearing my answer.”

The answer is B, right?

I’m a wife to my husband of 8 years. I kindly express the ways in which he can support me and share feedback about how something he does or says makes me feel. I don’t demand he do anything because I don’t want to insinuate that if he had the choice, he wouldn’t do it. If that were the case I wouldn’t have married him in the first place.

In other words, If we communicate in the same way we’d like others to communicate with us, I think we will all be better off.

So go ahead, ask me why I’m eating that. I may smile and say, “why are you eating that?” which may lead you to either feel what I’m feeling or you may say “because I love eating this” and then I’ll say “same here”.

The above example leads me to another point. I think we should encourage each other to actually say what we mean. Perhaps what you really want to know is, “why are you eating that cookie, I thought people with diabetes needed to stay away from sugar?” Now that is a question I can answer well for you because I understand exactly what you want to know and why!

“People with diabetes can eat sugar and for different reasons some eat more and some less than others. I am eating a cookie because I want to and am able to cover that cookie with fast-acting insulin. If you want to know why another person with diabetes is eating a cookie you’d have to ask them.”

I could also say, “I’m sorry, it is none of your business.” And you know what, that would be ok, too. I’m very much a proponent for your freedom and mine. You can ask a question and I don’t have to answer and vice versa.

But I am much more likely to answer with the former. I’m enthusiastic about helping others understand diabetes better. I think it helps society’s general understanding of diabetes. Just like I think encouraging questions instead of limiting them with rules and shaming helps society’s understanding of diabetes.

When people say something like, “At least you don’t have cancer” and it gets you upset, resist the temptation to be passive aggressive and just tell them the truth: “That is upsetting because it feels like you are minimizing my situation.” A compassionate and worthy individual would want to hear you out on this and would probably apologize for inadvertently belittling your illness by comparing it to another.

I totally understand the inclination to educate people on what is important to us. However, do you realize how hypocritical it is to tell people they must “get diabetes right”?  Does this mean we should spend all our free time educating ourselves on what is important to everybody else? I have had diabetes for over two decades, write and talk about it for a living, and even I can’t get diabetes right all of the time!

What if we all just drop demands and talk kindly and openly with each other as we go along?

You don’t have to agree with me, of course, but those are my reasons for suggesting we not demand people understand diabetes before they, um…understand diabetes.

It Took Me 20 Years of Diabetes to be OK with Finger Sticks

When I was diagnosed with type 1 diabetes at age 11, I would brace myself before every finger stick when checking my blood sugar. Sometimes I hesitated for only a moment and other times it took me about 3 minutes to hit the trigger. I was told by many well-meaning people that I would soon adjust and the fear and hesitation would subside.

Several years later I remember taking a long while to muster the nerve to intentionally cause myself pain and a school friend remarked, “You’d think you would be used to it by now.” She was right, I mean, I certainly did ask myself that. After all these pricks, why do I still feel the way I did when I was diagnosed? I would countdown in my head, lose my courage, and start all over again. When I finally did it, it was usually painful. My heart would race, I would sweat, and I’d find myself gasping for breath since I had just held it for too long. I wonder if this made it harder for me to test as often as needed. Maybe.

Then after more years of diabetes I one day stopped before pricking and thought, “Wow, I’m still scared of this little needle.”  Then I thought about how since I was 11 I had always uncovered my meter screen from right to left, anxious about the first number on the screen. Would it be a 1, 2, 3, or please-not a 4? I was anxious about the pain and the number result.

Soon after I read that anxiety can make us more sensitive to pain and I also read somewhere that we can help reduce the pain of our finger sticks if we calm ourselves before doing it. I found that taking a few really deep couple of breathes and doing the finger stick in the middle of an exhale helped. It was also helpful to accept that this was my reality and I could, in a way, embrace it by thinking “just do it” and not overthinking it. I even tried humming a theme song in my head during the blood sugar checking process. Aside from these techniques I worked on viewing my blood sugar results as merely helpful data and not a personal attack on my abilities to live with diabetes.

I’ve now had diabetes almost 22 years. A few days ago I checked my blood sugar and as I zipped up my meter case I realized that I didn’t hesitate before using the lancing device anymore. I thought, “Wait, when did this happen?” I can’t say exactly. It kind of snuck up on me–probably due to being distracted by two children. I am thrilled, though. Finally, after all these years I can comfortably check my blood sugar? It may sound like a small thing but it’s a big deal to me.

If you experience this hesitation and feeling of dread before inflicting necessary pain on yourself, I recommend three things:

  1. Don’t be hard on yourself. Not when it comes to finger sticks and not when it comes on your blood sugar levels.
  2. Try deep breathes and focus on the info you are about to get–versus focusing on the finger stick itself.
  3. Practice acceptance. Acceptance of whatever you are about to see on your meter before you see it. Remember that you need this information to keep yourself feeling good and well-informed. Accept that these finger sticks are painful. You aren’t weak or crazy for thinking so.

Be patient with yourself as you figure out what works. And if you have any tips that help you please share in the comments.

Friday 2015 Diabetes Blog Week What I Eat

Click for the Foods on Friday – Friday 5/15 Link List.
Taking a cue from Adam Brown’s recent post, write a post documenting what you eat in a day!  Feel free to add links to recommended recipes/shops/whatever.  Make it an ideal day or a come-as-you-are day – no judgments either way.  (Thank you, Katy of  Bigfoot Child Have Diabetes for this topic.)

 

Here is what I ate one day last week.  It’s pretty typical though I do like to change it up quite a bit:

Breakfast

In a magic bullet blender I put in a handful of frozen berries, a little fresh mint, some kale, chard, spinach, (or other dark leafy greens), some almond butter, chia seeds, and unsweetened coconut flakes.  I drink it up in a wine goblet.

11am I have coffee with a little milk.

Lunch

Kale salad with feta cheese, tomato, red peppers, and olives.  A slice of uncured deli turkey.

3:30pm I have tea time.  Today is a chocolate mint mate with nothing added.

Dinner

Some sauteed mushrooms, potato, squash, in a bed of peas with mint.  A glass of cheap wine.  A hibiscus popsicle.

 

This is a typical feel good day.  There are days when I have pizza with grilled veggies on top and ice cream.

 

Thursday 2015 Diabetes Blog Week Magic Changes

Click for the Changes – Thursday 5/14 Link List.
Today let’s talk about changes, in one of two ways.  Either tell us what you’d most like to see change about diabetes, in any way.  This can be management tools, devices, medications, people’s perceptions, your own feelings – anything at all that you feel could use changing.  OR reflect back on some changes you or your loved one has seen or been through since being diagnosed with diabetes.  Were they expected or did they surprise you?

 

Since blurting out “cure!” would make this post too short, I will say that I want management tools, devices, and medications to become accessible to everyone who needs them.  I’m tired of using insulin past it’s date, using expired strips for the past two years, and not affording a CGM.  More than that, I would love for anyone to have all they need to attempt to manage their diabetes well.  Imagine, having all those things still doesn’t guarantee managing diabetes well-that’s how tricky it is. But at least being able to not stress about acquiring tools (including basic ones like um, insulin) would be nice.  So we need better tools and we need better access to those tools.  (I wrote this post a few days ago, since then a similarly themed article popped up that I’d like to refer you to since it’s more articulate than my post: https://myglu.org/articles/a-view-from-the-other-side-of-the-tracks).

I could go the route of saying we mostly need people’s perceptions to change since that may lead us to the mass funding we need for a cure.  So there is that notable thing.

To be honest, I could go on all day about changes I’d like to see.  So I’ll stop there.  :)

Wednesday 2015 Diabetes Blog Week What I Need to Clean Out

Click for the Clean it Out – Wednesday 5/13 Link List.
Yesterday we kept stuff in, so today let’s clear stuff out.  What is in your diabetic closet that needs to be cleaned out?  This can be an actual physical belonging, or it can be something you’re mentally or emotionally hanging on to.  Why are you keeping it and why do you need to get rid of it?  (Thank you Rick of RA Diabetes for this topic suggestion.)

 

I am a sentimental fool.  Let me tell you about the lancet device I use.  Well, first let me explain that last year I was using a multi clix device and I really loved it (ooh and I know I want to try the fast clix!)  But then my dog chewed it up and I went back to my original 1994 (don’t know what brand, it has long rubbed off) lancet device.  It’s the one I’ve mostly used throughout the years.  I’ve tried new ones, agreed the new ones are better, and then my weirdo self went back to the original.

Why?  I think using this clunky, loud, and more painful device makes me feel like I haven’t had diabetes for 20 years.  There is a sense that 20 years hasn’t actually gone by.  It makes me feel younger because I was 11 when I started using it.  It makes me feel like there is some consistency to my diabetes even though I’ve been on a roller coaster in terms of how I manage my diabetes and even though my body has certainly been affected by diabetes.  People who are now long gone have laid eyes on this device, probably somewhat associating it with me.  The sound is familiar-it makes a horribly loud and clunky (not clicky) noise.  I’m appreciative of how this device hasn’t broken in 20 years despite all the times I’ve dropped it.  See?  I’ve got my silly reasons.

I’m hoping to tear away again and use a highly superior lancet device.  In the meantime I will stick with this one out of some strange sense of comfort and practicality  (because I rarely change the needle, I still have plenty of them for this device).  I just need to let go.  Accept some final things.  Like, that I’ve had diabetes a hella long time.  And that’s ok.  Because I’m ok.

Tuesday 2015 Diabetes Blog Week What I Keep Private

Click for the Keep it to Yourself – Tuesday 5/12 Link List.
Many of us share lots of aspects of our diabetes lives online for the world to see.  What are some of the aspects of diabetes that you choose to keep private from the internet?  Or from your family and friends?  Why is it important to keep it to yourself?  (This is not an attempt to get you out of your comfort zone.  There is no need to elaborate or tell personal stories related to these aspects.  Simply let us know what kinds of stories we will never hear you tell, and why you won’t tell them.) (Thank you Scott E of Rolling in the D for this topic.)

 

What do I keep private from the internet?  If you have known me a while you will know I don’t do private.  I try to not filter myself in order to appear “better”.  Oftentimes some of my posts are controversial.  But there are some things I will not share.  Not because I don’t want to but because I am extremely sensitive and I fear a simplistic understanding of what I write (not from most just a few)

I typically choose all my words carefully and deliberately.  But I’ve allowed myself to be shoved off my blog more than once because of criticism, hate mail, and heady assumptions.  I admit that any broad misunderstandings are my fault.  In those cases I didn’t write clearly enough.  Every so often though, I think I’m being clear, I test my blog out to a few people and ask them to tell me what I’m saying, the feedback says I’m clear,  I will publish officially, and then I will get a few responses that crush me.  When that happens, it seems like some readers are looking at things in a black and white fashion, skipping over some very important words I include, and instead of seeking clarification, they go off the rails at me.

Recently, I spoke to someone who I would regard as a nuanced thinker.  I shared what I haven’t shared before.  That will come out later for me to talk about but in the meantime I’d say that I feel sharing is highly influential and important in our community.  What some of you have shared in the past has been very freeing for me.  Being able to relate, to know I’m not alone, to feel I’m not a freak, etc.  One way we can encourage more of this honesty and openness is to read with the same honesty and openness and respond in kind.  We want to support and seek clarification, not jump to conclusions and crucify.  I’ve seen a lot of bloggers get tackled over a thought they had, a reasonable human thought.  And that doesn’t help us.  So keep sharing friends.  I will keep reading with my heart on my sleeve, understanding that you and I are no different and that you have every right to entertain certain thoughts and feelings. I try to remember too, that you are at liberty to change your mind anytime, just like me.

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