The CGM study that endocrinology offices do all over the country is a blind-to-the-patient, study. I started yesterday. I signed a form agreeing that if I broke or damaged the sensor I’d immediately pay $900 to replace it (striking me as a bit harsh considering accidents can happen). Then the woman in charge of fixing me up, a dietitian, inserted the sensor and told me that I would not know what my graph looks like but they will. She said they might call me if something needs to be changed. She handed me papers to fill out. I need to write down when I test and what my sugar is, when I eat and how many carbs I eat, how much insulin I take and detailed exercise info. I hate writing down all this stuff-perhaps because I’ve been told to, but it won’t be too bad considering it’s only a three day study.
I will return the sensor along with the paperwork on Thursday and in several weeks I meet with the doctor to go over the results. I don’t know if my insurance will cover this yet. I know they pre-approved the study so hopefully they will approve and cover my permanently using it. Someone at the Diabetes Sisters Conference told me I needed to have two lows under 50 per day while on the study for insurances to justify covering the CGM. I would rather go without it than have to lie to get it. For reasons of justice and pride I will not lie. However, I’ve already had two low readings in the 50’s and 60’s which I don’t consider problematic since I feel my lows at 60 and I am comfortably at home all day and can easily enough treat when needed. If I was out I’d make sure I ran my numbers closer to 120 than 80.
I feel strange that someone might know what my blood sugars are right now and I don’t. It’s an uncomfortable feeling and I look forward to experiencing the CGM along with the receiver (is that what it’s called?). Of course, this is If some unknowing party decides I should have it. (rolls eyes)
I cried earlier today reading a post at The Princess and the Pump written by a parent of a child with type 1 diabetes. This young girl has a CGM and her parents heard the alarm in the middle of the night, testing their daughter and finding her dangerously low. The little girl eventually had two low blood sugar induced seizures and ended up in the hospital. The parents are wondering if a faulty pump cartridge is to blame. The point is, the CGM saved this girl’s life. And just because I haven’t experienced ever needing help from a low blood sugar doesn’t mean I won’t one day. This story alone is enough motivation for me to want one if I can get access to it. If it isn’t covered by insurance I cannot afford it. So fingers crossed.
For those non-diabetics reading out there I ask you this; If you had type 1 diabetes and a simple device could alert you to dangerously high or low blood sugars (both of which could quickly lead to death) would you want it? If this was your child, would you want to know that a device was looking after their blood sugars while you and your child tried to do something normal like sleeping safely at night? Do you think it sounds reasonable that diabetics out there ask for their insurance to help cover the costs of a potentially life-saving device? I do. I mean, death is permanent. Technology like this can make all the difference.
Here is the best explanation I’ve ever heard of why insulin isn’t a cure that I hope everyone will take a minute to read: Not Even Close