Tag Archives: diabetes bloggers

National Diabetes Awareness Month 2012

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It’s National Diabetes Awareness Month.  And what are we going to do about it?  There are so many ways to pitch in and I’ll be trying to pass the word as I hear about it.  But first, I want to appeal to those out there possibly asking themselves the question, “What’s the use?”

First off, I understand.  I mean, as a society we’re also trying to cure a bunch of other devastating diseases so sometimes it feels overwhelming trying to fight for one’s own plight.  Even though I’m doing ok with my diabetes as of 11am this morning (it’s always subject to change, I’m aware of that), others have had loved ones die, depression, financial difficulties and other huge challenges to handle alongside their diabetes.  So I want to advocate not just for myself as a person with diabetes, but for all those who are struggling immensely and paying high interests for it.  Not to mention all their loved ones.

Secondly, diabetes researchers have given us very compelling statements about how close to a cure we are.  They say the main factor between us and our cure is in our wallets.  Now if you’re like me, your wallet is more decorative these days than anything else but just knowing that possibility is a strong push for me to think “Ok, how can I advocate for diabetes and get more money to the researchers?”

The clock is ticking for all of us and will soon be ticking for many more who will be diagnosed this month.

So again, It’s National Diabetes Awareness Month and what are we going to do about it?  Just pick one way in which you personally can help.  No matter how small, your help is a big deal.

In fact, start by doing the Big Blue Test.  And stay tuned for more info.

XOXO

Sysy

Clarifying Our Message as DOC Bloggers

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In talking with a friend recently, I thought about how bipolar diabetes blogs may seem to the outsider.  Often, in the DOC or Diabetes Online Community, people blog about how we are empowered patients, how we are happy despite our serious condition, how we like to be called “people with diabetes” instead of “diabetics”, and how we are lucky to have an illness that we can have so much control over.

On the flip side, it’s not unusual to read a diabetes blog that seems written for an audience who isn’t aware of the ins and outs of diabetes.  It’s common to read blogs about how miserable diabetes can make us, how our rights are infringed upon, how others aren’t sensitive enough to our plight, and how we feel like complete failures for living with a condition that is as misunderstood as it is impossible to perfectly control.

Many of us feel a need and an impulse to talk about our feelings on our blogs.  And since feelings come and go and their intensity ebbs and flows, this gives the appearance of instability.  The overwhelming majority of people who read diabetes blogs have diabetes so traditionally, this hasn’t been an issue.

Many of us also feel compelled to advocate on behalf of our condition and those who have it and therefore we write posts that are aimed at those who don’t understand diabetes and may need some educating and awareness on the topic.  And this works to some extent because family and friends who don’t have diabetes tend to read our blogs.

However, you can see how limiting this is.  Friends and family are already more compassionate to what we experience in life so who else is reading a diabetes blog to learn more?  A few doctors perhaps?  The newly diagnosed.

For those who start reading a diabetes blog without knowing much about diabetes, it’s understandable that the impression they get from the DOC is that “these people need to make up their minds!”  Are we happy and triumphant e-patients who are the boss of our chronic condition or the miserable and depressed victims of a terrible uncontrollable disease?  Well, we’re both and everything in between.

This is understood by me and all you other people with diabetes out there so it’s no biggie.  Except, lately, formal advocacy efforts and the media have both become very intertwined with us bloggers.  And I believe this means we need to amplify our awareness a bit about our writing.  We need to be very careful about how we say what we say.  Is this a drag?  Kind of, yeah.  But, with power and influence comes responsibility and as diabetes bloggers we are essentially representing other people with diabetes, disclaimer or not.

I don’t mean we don’t blog about what we want and say what we want.  But I think there are a few things we could do to help.  Here’s what I mean: (by the way I’ll be working on these myself)

1.  Be clear who your audience is.  Are you writing to those who don’t know about diabetes?  If so, make sure that’s clear to the reader.

2.  Be clear about which type of diabetes you’re talking about.  We need to ban together to make the types of diabetes more clearly distinguished by society.

3.  Before you publish your post, read it as if you were a newly diagnosed or the loved one of a newly diagnosed.  Do you feel like jumping off a bridge?  Consider adding a little something so the reader understands you and is put at ease.  Example:  Writing about how tired and depressed you are to be battling diabetes?  Think of one positive thing and add it.  It will help you and them.  At the very least make sure a reader can gather that you are simply expelling emotions that do not represent 100% of your emotional repertoire.

4.  Be careful about using absolute statements about diabetes.  It isn’t all good, bad, uncontrollable, controllable, easy, hard, always, or never.  If it is that way for you, preface with “I think” or some other sign of ownership.  Also, be careful with citing studies as proof for an absolute statement about diabetes.  Even studies are wishy washy.  They can’t help it.  We’re working with a zillion factors here.

5.  Be careful with causation and causality.  Learn the difference.  Just because your mom breastfed you and you still got diabetes doesn’t mean that breastfeeding doesn’t lower the risk for others-to the tipping point of them not developing type 1.  Just because someone is a thin type 2 doesn’t mean obesity doesn’t raise one’s risk for type 2 diabetes.  Just because someone is thin doesn’t mean they don’t have a high body mass index and aren’t clinically overweight.  When we say something isn’t true based on our very limited experience/knowledge, we’re not doing our community any favors.

I’m astounded by how bloggers are given more and more attention and opportunities to represent our community.  I think it’s fabulous.  I also think we could be a little more prepared so that when our time comes, we represent our community in the most helpful way possible.

Because working towards awareness, compassion, understanding, and a cure is something we’ll only achieve together.  And I know we all want those things.

Here’s a thought provoking post from Nathan of Edibles…The Diabetic Edition that I’d love for you to check out.  His insight helped spark the thoughts for this post.

Diabetes Blog Week 2012! Find a Friend

It’s Diabetes Blog Week and here is the prompt for today:

“Click for the Find A Friend – Monday 5/14 Link List.
It seems the most popular thing about Diabetes Blog Week is that it helps us find blogs we weren’t reading yet and connect with some new blog friends.  With that in mind, let’s kick off Diabetes Blog Week by making some new connections.  Think about the d-blogs you read that you think we may not know about and introduce us to one that you love!!  Let’s all find a new friend today!    (Special thanks to Gina, everybody’s Diabetes BFF, for helping me title this post!)”

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I think most people know about Riva Greenberg and her posts on her website Diabetes Stories and the Huffington Post but in case you haven’t had the pleasure of reading her posts, I’m telling you to check one out today!  Her posts are very intelligent and advocacy centered and I always take away some very useful nugget of information.

Everyone has their style of diabetes blog that they like to read.  I prefer diabetes blogs that aren’t so much therapeutic as they are sharing of information or inspiration that can be useful to me.

My exercise and hardcore athletics blogger friend is Chris Scully at CanadianDGal.  She has helped me so much with keeping up my exercise routine and pushing it further (and I love her dry humor).  I find that I keep up my exercise as long as I read her posts because I think that “surely I can take a walk, Chris runs marathons!”

I also have a really sweet blogger friend, Melissa who blogs at In the Short Rows who has a backyard farm and shares much of what she and her husband are doing there while tying it into her life with diabetes.  I totally love to hear about how she cooks their home grown food, takes care of chickens and bees, and balances that life with managing diabetes.

Edibles…(The Diabetic Edition) by Nathan is my new favorite blog.  He writes about his diabetes management in a way that causes me to question, learn, and think about my diabetes management.  Blogs like this one yield tangible results in my diabetes management and that is priceless!

I love reading about fellow diabetics who live differently from me and have talents that I don’t have.  It makes me feel awe about the world we live in.  It reminds me how there are a million ways to do the same thing and that our differences are fun and exciting and a great way to learn new things.

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