Tag Archives: DIB Syndrome

Do Nighttime Lows Give You Headaches?


It only happens a few times a year but there are times when I wake up in the morning, test, and discover I’m low.  I don’t even feel low when this happens and since it’s first thing in the morning, I assume I’ve been creeping down slowly throughout the night instead of shooting down fast.  Then, and it never fails, I start having a headache, much like a migraine over my eyes.  This only progresses throughout the day, getting stronger and stronger and doesn’t go away until the next morning, providing I don’t have any more lows.  If I have another low within 24 hours my headache really flares up and I feel like I have to lie down because it’s seriously overwhelming.

When we’re low, we lack glucose.  Our brain needs glucose to function and so I imagine this is what causes the headache?  I don’t know.  Anyway, does this happen to any of you?  I never get this headache after a low during the day, it’s always if I’ve had a low during sleep where it was prolonged.  I sure hope this doesn’t kill off too many of our brain cells when it happens!

If I’m not the only one this happens to, then it could be useful information to spread.  If someone is having headaches for no apparent reason, I’d suggest setting an alarm or two and testing overnight.  I did this to find out if my headaches were being caused by nighttime lows (that would often rise by morning thanks to the liver) and I found out I was having lows at night.  No wonder I was feeling so tired every morning!  I adjusted my insulin and voila, no more headaches.  (Make sure to talk to your doctor before adjusting insulin).

So, am I the only one this happens to?

Do you know about DIB Syndrome?


DIB stands for Dead in Bed.  It is a real syndrome that happens to a small number of diabetics.  We are not sure yet about it’s causes although it seems to be related to hypoglycemia.  This week, a 13 year old girl suffered from this and a family out there lost their precious type 1 diabetic daughter.

More info about DIB Syndrome can be found here.

And for a touching post which takes the words out of my mouth, I’ll let Kerri take it away.

I only write about this for awareness purposes because this is yet another strong reason a cure for diabetes must be found.  Just typing it all out is frightening and sad and reminds me of why I get up in the middle of the night, every night, just to test and make sure I’m doing alright. 

My thoughts and prayers are with the family of the little girl.