Tag Archives: IDF Charter

If You Do One Productive Thing Today, Let it Be This

Today, it’s Friday and we’re excited about the upcoming weekend.  Maybe we have big plans for Saturday night.  Maybe today we’ll relax at home with our loved ones.  We’ll give another shot or change another infusion set and check our blood sugar 6-10 times.

But somewhere out there is a little girl who is going to make her daily 10 mile trek in bare feet just to receive her insulin shot at a small clinic and have her blood sugar tested.  She’ll only get one shot today and one blood sugar test.  Who knows how she’ll make it through the day.

And somewhere else a person is winging their diabetes because they were never informed about carb counting and have no way of knowing how much insulin to give at any given time.

And somewhere, perhaps closer still, is a boy whose mom has to quit work because there is no one at her son’s school legally capable of giving him his life-saving medication.

We want to get President Obama to show up at the United Nations Summit on Non-Communicable Diseases (NCD) in September where he is not planned to attend.  It would send a strong message if he attended to push for better treatment for people with diabetes.  This means access for everyone, in our country and abroad to all the equipment and medicine we need to not only survive, but thrive with diabetes.  This means getting adequate information and education to those with diabetes about how to take care of themselves.  And this means equal and just treatment in the workplace and at school for adults and children with diabetes.

It’s in all of our best interest to support this. 

The International Diabetes Federation is willing to print out the postcards to mail to the White House if we just electronically sign a card online.  Go here to do this.

Be part of the solution.

And have a fantastic Friday :)

XOXO

Sysy

International Diabetes Federation Charter

 

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The international Diabetes Federation has put out a Charter which outlines the fundamental rights of all the world’s people with diabetes.  The IDF’s mission is to promote diabetes care, prevention, and a cure, worldwide.

The press release states:

“The landmark document places the rights of people with diabetes, their parents and carers into three focus areas; the rights to care; information and education and social justice, whilst at the same time acknowledging the responsibilities held by people with diabetes.”

This is a pretty uniting document if you think about it.  There are over 300 million people living with diabetes worldwide and this Charter seeks to represent them all by stating what their basic rights are with this disease.  No matter where you live, you do deserve all of the things stated in this document.

Such as the right to:

“early diagnosis and affordable and equitable access to care and treatment, regardless of race, ethnicity, gender and age, including access to psychosocial care and support.”

“advocate, individually and collectively, to health providers and decision makers for improvements in diabetes care and services.”

information and education about diabetes, including how it can be prevented, how early detection in high risk individuals is an advantage, how the disease can be managed effectively and how to access education and clinical resources.”

“be a fully engaged member of society, treated with respect and dignity by all, without feeling the need to conceal the fact they have diabetes.”

They also outline a number of responsibilities held by people with diabetes, such as the responsibility to:

“manage their agreed care and treatment plan”

“show consideration and respect for the rights of other people with diabetes and their healthcare providers.”

The only problem I see is one of the responsibilities is this guideline.  It states that people with diabetes have the responsibility to:

“inform family, school, work and social colleagues they have diabetes so that they can be supportive to the person with diabetes, if and when needed”

That’s only going to happen when people feel safe to do so.  And we will never get to the point where absolutely everyone feels safe to do so.  Not to mention there are strong personal preferences with this sort of thing.  I do believe in being open about diabetes however, I do believe in a person being able to conceal it if it’s what they want. 

These guidelines are considered a “gold standard” meaning, I think, that they are guidelines to aspire to and although we may not reach them, we might get close.  The closer we are to all people being treated properly with diabetes, the healthier we’ll all be.

Those are just a few of the guidelines stated in the Charter and the IDF is asking for all governments worldwide to sign up for and aspire to these guidelines.  According to the IDF, you and I- and anyone else can encourage politicians, educational organizations, employers, and health care professionals to sign it. 

If you are interested in reading the Charter, which by the way is very easy and fast to read, go here and then scroll to the bottom of the page where you can download the pdf of the Charter or read more info.

Overall I thought it concisely covered just about everything.  Check it out and let us know what you think.